BAPES - Project List

Building a multilingual Internet site about rare diseases and orphan drugs with news, educational topics for patients, doctors and associations, discussion forums etc.

Creation and validation of a survey form for studying the underlying prevalence of some rare diseases in Bulgaria;

Receiving institutional support from the medical scientific societies;

Depositing an official proposal for establishment of National program for rare diseases and orphan drugs at the Bulgarian Ministry of Health;

Building a database of medical professionals and patient associations from Eastern Europe, specialized in certain rare diseases;

Active search for partners for collaboration and support at a national and international level;

First Eastern European conference on rare diseases and orphan drugs;

Lobbying and advocating for adopting of rare disease and orphan drug legislation in Bulgaria;

Networking and integrating with the other similar national and international organizations;

Regional conferences and workshops participation, in order to increase the awareness of medical community and present the activities of BAPES;

Project List